Suggested Links - Northside Hospital Perinatal Loss Office

Suggested Internet Links

Some sites provide medical information and some provide emotional support, resources, and memorials.

Please contact us at northsidepnl@gmail.com if you discover websites that are no longer active or if you have suggestions for additions to our list.

Please keep in mind that sites that are marked "medical information" may describe medical conditions, may contain medical terminology or phrases (such as referring to a miscarried baby as a "fetus," or using the term spontaneous abortion" for a miscarriage).

None of this information is intended to replace information received from your physician.

Sites are grouped by category but not listed in any particular order.

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Any Type of Perinatal Loss

Faces of Loss, Faces of Hope is a place for us to come together and share our stories and our faces with others who may be looking for reassurance that they are not alone:   www.facesofloss.com

The American Pregnancy Association is a national health organization committed to promoting reproductive and pregnancy wellness through education, research, advocacy, and community awareness:  www.americanpregnancy.org/pregnancyloss

A Place to Remember provides uplifting support materials for those who have been touched by a crisis in pregnancy or the death of a baby: http://www.aplacetoremember.com/index.html

Grief Watch: Resources for both bereaved parents and professional caregivers. This organization was created by Pat Schwiebert, an RN with extensive experience in perinatal bereavement.
www.griefwatch.com

SHARE Atlanta: Local grief support groups, memorial services, workshops,and outreach for healing and advocacy; memory bricks and angel memorial garden located in Sandy Springs; phone support, website that contains over 400 pages and includes forums, written materials, and opportunities for sharing.  http://www.shareatlanta.org/legacy/main.htm

SHARE (national office): Support, education, information, and resources for parents and professionals touched by perinatal loss. www.nationalshare.org

griefHaven:  The Erika Whitmore Godwin Foundation is a nonprofit foundation dedicated to assisting parents who have lost a child from any cause, at any age. They also provide assistance to other family members, friends, professionals, and those who want to help but don't know how. They offer a free newsletter, a professional video entitled "Portraits of Hope," a chat room, memory gifts, etc.
https://www.griefhaven.org/

Missing GRACE Foundation:  Resources and support for families that have experienced pregnancy loss, infant loss, infertility, or adoption and to advocate for comprehensive, patient-focused prenatal care for all women. Five core areas encompass the heart of the mission: Grieve, Restore, Arise, Commemorate and Educate.  www.missinggrace.org

First Candle: Dedicated to safe pregnancies and the survival of babies through the first years of life. Our current priority is to eliminate Stillbirth, Sudden Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant Deaths (SUID) with programs of research, education and advocacy. Grief counselors available 24/7 (toll free) at 1 (800) 221-7437. www.firstcandle.org

HopeXchange offers information, educational and uplifting articles, booklets, pamphlets, books, miscarriage FAQs, extensive list of links and resources, and free monthly newsletter
www.hopexchange.com

HAND (Helping After Neonatal Death): To help parents, their families, and their healthcare providers cope with the loss of a baby before, during or after birth www.handonline.org

SANDS:  Self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth www.sandsvic.org

Rowan Tree Foundation:  Nonprofit organization that offers online peer supportforums, outreach services, memorial events, education, and awareness opportunities http://www.rowantreefoundation.org/index.php?option=com_frontpage&Itemid=56

Infertility, Pregnancy Loss, & Adoption Bulletin Boards and Forums on INCIID:  You can submit questions to medical and other professionals in thefields of infertility, pregnancy, pregnancy loss, and adoption: www.inciid.org/forums/miscarriage/index.html

Heartstrings Pregnancy & Infant Loss:  Offers group support and one-to-one support for those with similar losses through its Connections program. Also offers subsequent pregnancy support. All programs are available free to anyone who has lost a baby from conception to one year of age. http://info.heartstringssupport.org/about.php

Amniotic Band Syndrome

www.amnioticbandsyndrome.com

Anencephaly

www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm

www.anencephaly.net

www.anencephalie-info.org/e/index.htm (also has information in French, Spanish, and several other languages)

Antiphospholipid Syndrome

www.mayoclinic.com/health/anti-phospholipid-antibody-syndrome/AN00140

www.intelihealth.com/IH/ihtIH/EM/9339/30957.html

http://www.medicinenet.com/antiphospholipid_syndrome/article.html

http://www.apsfa.org/aps.html

http://sclero.org/medical/symptoms/associated/antiphospholipid/a-to-z.html

Art and Music Relating to Grief

The Secret Club Project: an award-winning international project featuring over 45 artists exploring infertility, miscarriage and stillbirth http://secretclubproject.org/home.html

Music Therapy:  http://www.musictherapy.org/

Creativity and Grief: http://www.recover-from-grief.com/creativity-grief.html
   The website teaches you how to:
   Draw out your emotions with pencil, pastels, and ink
   Discover the fluid and vivid world of painting
   Find 3D stress relief through sculpturing
   Craft a "grief mask," a direct window to your soul
   Build an altar or memory box to reconnect with your lost one
   Tribute Scrapbooking for family grief therapy
   Start your private "Grief Journal"

Cancer and Pregnancy:

http://www.pregnantwithcancer.org/

http://www.cancerandpregnancy.com

http://www.cancer.gov/cancertopics/pdq/treatment/breast-cancer-and-pregnancy/healthprofessional

http://pregnantcancer.blogspot.com/

http://lymphoma.about.com/od/hodgkinlymphoma/qt/pregnancy.htm

http://www.cancer.net/patient/Coping/Emotional+and+Physical+
Matters/Sexual+and+Reproductive+Health/Pregnancy+and+Cancer

http://www.cancer.gov/cancertopics/pdq/treatment/breast-cancer-and-pregnancy/Patient

http://www2.mdanderson.org/app/pe/index.cfm?pagename=opendoc&docid=2107

Chromosomal/Genetic Conditions

http://www.marchofdimes.com/professionals/14332_1209.asp

http://www.genome.gov/11508982

http://www.chkd.org/HealthLibrary/Content.aspx?pageid=P02115

http://www.rarediseases.org/search/rdblist.html

http://www.aheartbreakingchoice.com/risks.html

Congenital Diaphragmatic Hernia (CDH)

www.cherubs-cdh.org

www.pedisurg.com/PtEduc/Congenital_Diaphragmatic_Hernia.htm

http://fetus.ucsfmedicalcenter.org/cdh/

Cystic Hygroma

http://genetics.emory.edu/pdf/Emory_Human_Genetics_Cystic_Hygroma.PDF

http://www.aheartbreakingchoice.com/cystichygroma.html

Death of Child at Any Age

www.compassionatefriends.org

www.missfoundation.org

www.bereavedparents.com

www.bereavedparentsusa.org

www.kindermourn.org

https://www.griefhaven.org/

http://www.silentgrief.com/articles/

Difficult Decisions in Pregnancy

www.aheartbreakingchoice.com

www.poorprenataldiagnosis.com

selective reduction:  http://www.thelaboroflove.com/forum/loss/sr.html

related to maternal health issues:  http://www.afterabortion.com/maternal_health.html

Difficult decisions in NICU

http://www.pregnancy.org/question/difficult-decision-making-nicu

Ectopic Pregnancy

http://www.advancedfertility.com/ectopic.htm

http://www.ectopicpregnancyfoundation.org/

http://www.marchofdimes.com/pnhec/188_851.asp

http://www.virushead.net/nbaby.html

http://www.americanpregnancy.org/pregnancycomplications/ectopicpregnancy.html

Funerals and Memorial Services

http://www.creative-funeral-ideas.com/

http://dying.about.com/od/childormemorialservice/Planning_a_Childs_Memorial_or_Funeral_Service.htm

Group B Strep

http://www.americanpregnancy.org/pregnancycomplications/groupbstrepinfection.html

http://www.dhpe.org/infect/strepb.html

http://www.marchofdimes.com/professionals/14332_1205.asp

http://www.groupbstrep.org/

Heart Defects

http://tchin.org/index.htm

http://www.littlehearts.org/

http://www.pediheart.org/parents/defects/HLHS.htm

HELLP Syndrome
http://www.hellpsyndrome.org/

www.nlm.nih.gov/medlineplus/ency/article/000890.htm

Hydrocephalus

http://www.hydroassoc.org/

http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm

http://www.forparentsbyparents.com/index.html?pn=1291

http://www.ghrforg.org/faq.htm

http://www.chw.org/display/PPF/DocID/35471/Nav/1/router.asp

Hypermesis

http://www.angelfire.com/nt/hugs/

http://www.hyperemesis.org/

forum for moms who had to terminate due to HG:  http://forums.helpher.org/viewforum.php?f=20

Incompetent Cervix

Cervical insufficiency

http://pregnancy.about.com/cs/incompetentcervix/a/aaincomp.htm

www.americanpregnancy.org/pregnancycomplications/incompetentcervix.html

http://www.babycenter.com/0_cervical-insufficiency-incompetent-cervix_1425796.bc

http://www.marchofdimes.com/pnhec/188_20201.asp

http://miscarriage.about.com/od/stillbirthlateloss/p/incomp_cervix.htm

http://www.uchospitals.edu/specialties/obgyn/cerclage/faq.html

Miscarriage

Information, healing, and hope:  http://pregnancyloss.info/

Guide for parents, The "truths" about miscarriage, A Mother's Prayer/ Affirmation After Miscarriage: www.ivf.com/misc.html

Submit questions to medical and other professionals on the topics of infertility, pregnancy, pregnancy loss, and adoption: www.inciid.org/forums/miscarriage/index.html

www.miscarriageassociation.org.uk/ma2006/index.htm

http://www.americanpregnancy.org/pregnancycomplications/miscarriage.html

http://www.emedicinehealth.com/miscarriage/article_em.htm

http://www.babycenter.com/0_understanding-miscarriage_252.bc

http://www.marchofdimes.com/professionals/14332_1192.asp

http://www.justmommies.com/articles/faq-miscarriage.shtml

http://www.angelfire.com/emo/miscarriage/

http://www.miscarriagesupport.org.nz/

http://miscarriage.homestead.com/

http://miscarriagehelp.com/

Molar Pregnancy

http://pregnancy.about.com/cs/pregnancyloss/a/aa072599.htm

Online Mental Health Counseling

http://www.dearshrink.com/caringtherapy.htm

Online Support Groups

http://www.dailystrength.org/c/Miscarriage-Stillbirth/support-group

http://www.inciid.org/forum/

Parents Partnered for Preemies (Northside Hospital)

Picture Re-touching and Portraits

www.e-retouch.com/Pages/about.htm

www.portraitsbydana.com/

www.pencil-portrait-drawing-artist.com/memorials.html

babyangelpics.com/

http://www.drawnbydebbie.com/memorial.htm

http://www.heatherspears.com/drawings/bereavement.htm

Placenta Disorders and Problems

http://www.marchofdimes.com/professionals/14332_1154.asp

http://www.marchofdimes.com/pnhec/188_1128.asp

Potter’s Syndrome

http://www.potterssyndrome.org/

Pregnancy and Infant Loss Awareness

Atlanta Walk to Remember

http://www.october15th.com/

http://www.rowantreefoundation.org/index.php?option=com_content&task=view&id=32&Itemid=1

http://www.stockpins.com/pregnancy-infant-loss-awareness-pin.html

Pregnancy Induced Hypertension (PIH), Pre-Eclampsia, Eclampsia

http://www.preeclampsia.org/

http://www.pre-eclampsia.co.uk/

www.medicinenet.com/pregnancy_induced_hypertension/article.htm

www.gynob.com/htiup.htm

pregnancy.about.com/od/hypertensionpre/a/pihinpg.htm

familydoctor.org/064.xml (Spanish version available)

www.mayoclinic.com/health/preeclampsia/DS00583

www.webmd.com/content/article/51/40800.htm

Premature Rupture of Membrances (PROM)

http://www.kanalen.org/prom/

http://www.pediatrix.com/body.cfm?xyzpdqabc=0&id=7&action=detail&AEProductID=Adam2004%5F14&AEArticleID=000143&AEArticle%20and%20delivery

Medical Information:  http://www.aafp.org/afp/2006/0215/p659.html

Rare Disorders

www.rarediseases.org

Recurrent or Repeated Losses

www.fertilityplus.org/faq/miscarriage/rpl.html

http://www.ivf.com/fert_miscarriage.html

http://www.kaisernetwork.org/Daily_reports/print_report.cfm?DR_ID=9716&dr_cat=2

http://miscarriage.about.com/od/thrombophiliadisorders/i/mthfr.htm

http://community.babycentre.co.uk/groups/a164715/recurrent_miscarriage_support

Stillbirth
www.stillnomore.org

www.stillbirthalliance.org

www.firstcandle.org

www.uk-sands.org

http://www.missinggrace.com/Links.html

www.sandssa.org

http://www.uwalumni.com/home/onwisconsin/archives/winter06/stillbirth.aspx

http://www.dailystrength.org/c/Stillbirth/support-group

http://www2.marshfieldclinic.org/wissp

Triploidy

http://children.webmd.com/triploid-syndrome

http://www.associatedcontent.com/article/441672/triploidy_syndrome_how_to_cope_with.html?cat=5

http://www.rarechromo.org/information/Other/Triploidy%20FTNW.pdf

Trisomy

http://www.trisomy.org/

http://www.chromosome18.org/Genetics/FactsAboutGenetics/tabid/132/Default.aspx

http://www.ob-ultrasound.net/xdown.html

Turner Syndrome

http://rarediseases.about.com/cs/turnersyndrome/a/020803.htm

http://www.turnersyndrome.ca/

http://www.turnersyndrome.org/

Twin-to-Twin Transfusion

http://www.twin2twin.org/Research05.htm

http://www.obgyn.umm.edu/ttts/what.html

Urea Cycle Disorders

http://www.nucdf.org/index.htm